Veranstaltung für Fach- und Laienpublikum
The challenge of being rare
A meeting for European patients with rare forms of Melanoma
Patients with Rare Melanomas face unique challenges: Rare conditions are often diagnosed late or incorrectly, with limited access to specialists and centres of excellence. Genetically and clinically distinct from adult cutaneous (skin) Melanoma, existing treatments are either less efficient or have not been systematically tested in Rare Melanomas. Small patient populations mean slow recruitment for clinical trials and the general scarcity of clinical data is causing restrictions in access to potentially effective treatments in many countries today. This leaves patients with rare forms of Melanoma with few options, in particular in the metastatic setting.
MPNErare2019 will focus on the particular needs of these patients and the challenges of being rare when it comes to accessing treatment and clinical trials. Meet like-minded people and discuss what we as advocates can do to improve the outcomes of patients with rare Melanomas in Europe.
For further information about the event, please see here.
Please note that the conference language is English.
See agenda below
Melanoma Patient Network Europe
25 - 27 October 2019
Mercure Hotel MOA Berlin
Stefanstr. 41 | 10559 Berlin
Saturday - Sunday:
Charité Campus Virchow-Klinikum
Mittelallee 10, Lecture Hall 6
For more information about Melanoma Patient Network Europe and MPNErare 2019, please check out the following links: